Wellington Road Family Practice – Opting out of Data Sharing
There are currently 3 separate NHS initiatives regarding the way in which it is proposed that information in your medical record is held and shared with other agencies. You should have received a letter regarding the first two. You have not received a letter regarding the third initiative. Information sheets about the third are available from the surgery or from the surgery website wellingtonroadfamilypractice.co.uk. As this may seem confusing, we have tried to clarify each separate initiative below and to give you a simple means of opting out of any of them if you wish.
1 ‘Summary Care Record’
This is a NATIONAL system that will take only medication, allergies and adverse reactions information from your record, so that information is available to clinicians if you are taken ill anywhere else in the country.
2 ‘Connecting Care Record’
This is a LOCAL system that will enable clinicians to look at the key information from your record e.g. if you suffer from diabetes or a heart complaint. Information about this was on the back of the letter about the Summary Care Record. This data will be available to LOCAL (Bristol and eventually Weston) Hospitals and local Out of Hours services, who may deal with you at any time in the future. If you wish to opt-out of the Connecting Care Record by telephoning PALS (Patient Advice and Liaison Service) on 0800 073 0907 (free from most landlines) or 0117 947 4477. Alternatively you can download a form from the South Gloucestershire CCG website to send in or email to the CCG – (www.southgloucestershireccg.nhs.uk – search ‘connecting care’)
3 ‘care.data’ or HSCIC (Health and Social Care Information Centre)
NB You have not received a letter about this but you have a choice to make whether to allow your data to go to HSCIC or beyond. care.data is a NATIONAL system that will take identifiable patient information from your medical record including your details regarding chronic diseases, height and weight, blood pressure etc into a central system at the HSCIC for central health planning and health research. Hospitals and Social Services are also sending data to HSCIC. Your data may also then be passed on to third parties or companies who may use it for statistical purposes. Please read the leaflet that explains this before making a decision on what your wishes are.